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Epilepsy Association of Western Australia (Inc.) Annual General Meeting Thursday October 30th 2008 @ 6.00pm
(Posh Spice) Her son Romeo has Epilepsy
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SUDEP Book now released - World First SUDEP stands for Sudden Unexpected Death in Epilepsy. It is an uncommon occurrence but it does happen. Risks appear to be negligible for those whose epilepsy is well controlled and greatly reduced for those who follow a healthy lifestyle. More research is needed and some is occurring. Your local epilepsy association can provide you with further information about SUDEP. It is not helpful to discuss SUDEP immediately following a diagnosis of epilepsy. Based on current data, you will gain excellent seizure control and the possibility of SUDEP will not become an issue. If you do not gain excellent seizure control then there are things that you can do to reduce the risk of what is, in any case, an uncommon phenomenon and your epilepsy counsellor will certainly help you deal with the issue. We mention SUDEP here because it is important
that you know about it and that you understand that no matter how unlikely it
might be for you, epilepsy can and does kill people. It underlines the
importance of taking seriously the need to work with your doctor and your family
and your epilepsy counsellor to minimise the impact of epilepsy in your life.
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